Friday, November 9, 2012

Sorry.  No pictures with this post.  Just an update.

We had clinic on Monday.

It went pretty well.  For the most part, Ike is normal!

The IV start went pretty good.  They got it in one poke, and he didn't attack me this time!  But, it wasn't drawing perfectly, so they had to mess with it a bit.  So by the time it came to leave, Ike had enough.  He did attack me then.  Oh well.  We will just keep working on it!

The biggest change is this. 

We usually get an hour long infusion of this antibiotic called Pentamidine.  Well, there is a national shortage, so they had to put Ike back on bactrim.  Now, I am all about not having to do hour long infusions.  But what I AM opposed to is going to the hospital.

When we put Ike on Bactrim at the beginning of maintenance, it caused a huge drop in his counts, and we ended up in the hospital.  For a week.
 
The docs seem to think that he will tolerate it better this time around.  We go in for a count check in about a week to hopefully catch any drastic drop in counts before having to go to the hospital.  
 
I can't say I am super thrilled with the decision.  But there really is no other better option at this point.  But, hey.  If it works, and doesn't bother Ike too much, it will save us an hour at clinic!  Which I am totally fine with!
 
Sunday marks Ike's 2 years since diagnosis, and I am sure I will post more about that later.  But for now.  One crazy thing at a time!
 
Adios!

Friday, November 2, 2012

Wow.  We have been doing a whole lotta this....


We have gone from one kid to the next with being sick.  First it was Laney with a fever of 101.  This is never good in our house.  Because if Ike spikes a temp that high, to the hospital we go!  So, with lack of sleep and worry, you can imagine how fun it has been around here this past week!  We are not completely out of the woods yet, but thankful for no fever higher than 99.7 for Ike!

Well, lets back it up, BEFORE my house caught the plague!
 
We had the Rodriguez family over!  We went to Harvest Days at Blanford Nature Center.  Complete with hay rides, scarecrow stuffing, crafts, and lots of junk food!  Thanks Mom for treating us!  And Jamie for all your help!  (pregnant Mom vs. 5 kids would not have happened!)








These next pictures are a little blurry.  With my iphone, I can let the kids see themselves as I take the picture!  This has resulted in some of my better pictures of the kids, but grainy.
 


 Seriously. If I could sum Charlotte up in one picture.  This would be it!


 



Jacob has been teaching Ike to fight.  He is pretty aggressive!  And I think Jacob has been enjoying it!




I also had a practice run with our costumes.  Gabby HATED hers!  So we picked a different one for halloween.  Plus, in these pictures, Ike wanted to be a bat like Laney.  He chose a pumpkin for Halloween.  Not exact.  But cute none the less!






These kids will do ANYTHING for candy!

And some random happenings.




Just every day life here.

And last but not least.  The day Ike and Laney had to throw away ALL their markers and crayons...


Hot pink Tu-tu and all.  Laney was in time out for a while.  Plus, they colored on my walls.  Sigh.  It's only a season, right?!

We have also had Laney's first conferences.  I was super worried about it.  You see, Laney is just, Laney.

It was better than I expected!

Her behavior is a pretty much it.  Laney does what she wants.  And there is not a lot you can do to change her mind.  You pick your battles!  When she is "on" she is great!  Her teacher confirmed what I already felt.  That Laney is super sweet and she is not malicious with her behavior.  But, we need to get her to focus.

That just continues to bring me to my knees.  I know God can help her.  That He knows her heart.  So, I leave it at that.

Ike has been alright.  He has been complaining a ton about his legs hurting and now it is his arm.  This totally freaks me out.  The docs are not concerned yet, but I constantly find myself keeping my mind in check.  Our next clinic visit is this Monday, the 5th.

So, for now, we are just hunkering down.  Preparing for winter.  Which I do not enjoy.  Stuck inside a lot.  Boots.  Mittens.  Hats.  All while being pregnant.  Bending over is really not my favorite thing to do right now.  But until everyone can put their own shoes on, I get the joy of being constantly out of breath!  9 more weeks right?!  (Praying I go early.)

And that is it for now!

Adios!